If you have read some of my previous posts you will have learned that during one of my exercise sessions on the rowing machine my blood pressure suddenly crashed and I fell off the rower. That marked the start of the progression of a pre-existing condition which had been causing my POTS and OI.
As someone who has experienced POTS and OI on and off for many years and, in some previous instances, was confined to a wheel chair in order to get things done, I have always told myself "it could be worse; I could have a terrible skin rash and be itchy all day". Well, I don't have an itchy skin rash but I do have Ehlors Danlos and a progressive mast cell condition which I might consider swapping for an itchy rash if one could do such a thing.
When I started my blog I wanted to share my experience with the Levine Exercise Protocol and what it did for my POTS symptoms. More importantly, writing was my way of framing my reality of living with this condition. Writing helped me examine some of the reasons why I was so physically challenged and what steps I could take, based on evidence, to make me feel better. My writing was like a mirror in which I could see myself and my challenges objectively.
What overtook my writing was the blog became a source of information and, I think, optimism for others suffering from the same condition. I began to feel an obligation to continue to write for the readers with optimism and to provide information because I wanted to help those who live with POTS and OI. However, my mirror was gone and and I could no longer write honestly about my challenges.
It has been almost one year since I stopped writing and I would like to begin again.
But like a traveller from Boston who thought they were taking the "Northeast Regional" train to Virginia Beach when they were actually on the "Downeaster"on their way to Portland I find myself on a different journey.