As I start this new exercise regime from Dr. Levine I will also start a diet designed by a nutritionist and physiologist (not part of Levine's group)consisting of protein & low glycemic carbs. NO MEDS as I have always felt that I was not prepared to be a guinea pig for medicine that had an uncertain effect and potential harmful side effects. I will take nutritional supplements.
Although I was first diagnosed with POTS and OI at John Hoplkins 12 years ago my first epeisode was 25 yrs ago!! The episodes seem to be cyclical with each episode lasting about 2-3 years. When it is at its worst I am wheelchair bound and am not really coherant.
- low bp
- chest pain
- visual problems - white outs, dimming
- confusion, memory loss
- exercise intolerance!!
Wish me luck and I hope this new protocol will yield results that all of us can benefit from.