For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Sunday, January 24, 2010

Dr. Levine Exercise Protocol for POTS

Next Monday I will be starting Dr. Levine's exercise protocol for POTS sufferers. I cannot disclose the nature of the protocol until the study is published but I can talk about whether it is working. It will take 3 months to complete. Hopefully my progress will be positive in which case perhaps others will benefit from this sharing of my experience.

As I start this new exercise regime from Dr. Levine I will also start a diet designed by a nutritionist and physiologist (not part of Levine's group)consisting of protein & low glycemic carbs. NO MEDS as I have always felt that I was not prepared to be a guinea pig for medicine that had an uncertain effect and potential harmful side effects. I will take nutritional supplements.

Although I was first diagnosed with POTS and OI at John Hoplkins 12 years ago my first epeisode was 25 yrs ago!! The episodes seem to be cyclical with each episode lasting about 2-3 years. When it is at its worst I am wheelchair bound and am not really coherant.
Symptoms:

  • low bp
  • chest pain
  • fainting
  • IBS
  • neuropathy
  • migraines
  • visual problems - white outs, dimming
  • tachycardia
  • confusion, memory loss
  • exercise intolerance!!

Wish me luck and I hope this new protocol will yield results that all of us can benefit from.

1 comment:

  1. PS - People suffering from POST or OI are notoriously exercise intolerant. Dr. Levine's protocol is designed to overcome exercise intolerance by pairing specific exercises with specific heart rate zones. The protocol dictates frequency and duration of the exercises and instructs patients to build blood volume through methods which DON'T include medications!

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